This may seem like a random rant but in the past week I've been asked numerous times who my guardian was. I am 32 years old. What. The. Hell.
Every time I am asked who to put as an emergency contact the medical staff then assume that person is my guardian! Why? Is there something that they know about my diagnosis that I don't? Or are they passing judgement on me based on overt physical symptoms? I am still incredibly articulate, intelligent and knowledgeable about my medical care. I'm disabled not mentally incompetent.
This came up again the other day when applying for in-home services. A woman called twice in an hour leaving messages to call her back about my application. Obviously it was not a convenient time for me! She then called a little while later and left a message that if I did not call her back within the hour that she would call my mother and if she could not be reached then she would assume that I was not interested in receiving services. Oh really?? That sounded an awful lot like a threat. I called her back but emphasized that she was to never call my mother unless it was an EMERGENCY since that was what EMERGENCY CONTACT means, damn it! Also, if I had gone through a lengthy application process then OF COURSE I needed the services. Talk about lacking understanding.
So my question is this, "Do others receive this kind of condescending treatment? If so, how do you respond?"