Do I have what?!

I finally had my long awaited appointment with the new spine surgeon yesterday.  Mr. No-Personality didn't answer any questions, however he did have more thorough x-rays done than my regular surgeon and has ordered a CT scan of my lower back.  Two brownie points for Mr. No-Personality. 
During this appointment a very strange thing happened.  Mr. No-Personality actually broke from his perpetual monotone and became very excited.  A breakthrough?  Some overlooked aspect of my spine?  Not exactly.  He was excited about my large, brown birthmark on my knee.  (I just don't get some people.)  He asked if I had more.  "Uh, yah.  Why?"  Again no answer (I think it's their office policy or something.) "Do you have freckles under your arms?" he asked next (still excited).  "Uh, yah.  Why?"  You guessed it, no answer.  Next he lifts my arm, and no joke, sticks his excited face in my armpit. (The word Nutjob crossed my mind.)  He then ordered x-rays.  After waiting over an hour for him to come back from reviewing the x-rays he came in stared at us, said he didn't no why I was doing so badly this long after my fusion, and ordered a CT scan. 
On the way home as you can imagine the topic turned quickly to "what the heck was he doing in your armpit?" (giggle) "what was up with the freckles?".  So of course I couldn't wait to get home and Google 'brown birthmarks freckles armpit'.  Surprisingly there is in fact a condition that matches this.  Neurofibromatosis is a genetic disorder where the person exhibits at least two of the following symptoms; brown "cafe-au-lait" spots, freckles in strange places such as in the armpit or groin, neurofibromas, optic glioma, Lisch nodules, and displasia.  People with neurofibromatosis develop tumors on the covering of nerves.  Could I have this?  I wish that Mr. No-Personality had actually talked to me about this.  Perhaps he is waiting to see if any of these tumors show up on the CT scan.  Grrrrr.....

For more info on Neurofibromatosis check out Gillian Anderson's website (yah, X-File star Gillian Anderson) where she has gathered information, links and an opportunity to support more research through her CafePress Alien Collection.

Comments

[Gimpy Mumpy]

No follow-up yet. Mr. No-Personality is, ahum, a busy man and so I guess I have to wait until my follow-up appointment after the CT scan. My CT is on Monday May 9th and my follow-up is on May 19th so I get to obsess about this for a few more weeks.
Hmmm....Discovery Health, that could be a cool gig but I have the same "curlyJewgirl hair" that you mention in one of your posts so it might have to air on a horror chanel instead. It was so bad in the hospital that when MY mom tried to help by putting it into pigtails I ended up looking like a damn Fraggle. Damn I laughed so hard I wanted to die, it hurt so bad, but it's one of my fonder hospital memories.

[Eliza]

(Okay, yes, I've given up holding back and really am commenting on EVERYTHING).

So, did you get any follow-up about this? (I have to say that, as soon as I read the part about the birthmark, my first thought was NF. But I watch a ridiculous amount of the Discovery Health Channel, and they LOVE them some NF there). Still, it seems pretty unlikely. But, hey, if you do have it, maybe you could get a show on DHC. And be even more famous.